zx12girl
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posted November 13, 2004 06:55 PM
 Edited By: zx12girl on 13 Nov 2004 19:15
I really need your assistance???
I am just looking for information and possible leads.....I have always given to charities and never have had a need to search for one..... I always read about this stuff....Did not image it could happen in my family and especially to my little buddy!!!
A little information (History) -
My favorite little niece, Jessica (She is full of fire just like me) was a healthy little girl until this year. She became very ill with a disease called HLH (hemophagocytic lymphohistiocytosis). She started by getting very ill and retaining water. The water started to surround her organs and her organs started to shut down. It almost killed her. Very fortunate that Jessica was flown to the Riley hospital in time to properly diagnose the fatal disease.
My little 6-year-old niece has been though almost a year of Chemotherapy now and the disease has returned. She will now have to have a bone marrow transplant. My Brother and Sister-in-law will have to stay in Indianapolis for three months while Jessica's body learns to accept the new bone marrow (They are in Indy now and the transplant is scheduled for Friday).
The consistent weekly visits back and forth to Indianapolis has made it impossible for my brother to keep his job. The Doctors instructed my brother that Jessica would also have to be in an extremely clean environment when she returns from the 2 to 3 month hospital stay.
We (My whole family) are trying to figure out how we can get the old house that they live in clean and "Jessica" ready for her return. They will need more then the resources that we have.
I am not sure if we will have all of the materials needed to complete the project. We have to put in clean-able/ sterile items and surfaces-
- Ceramic tile floors (kitchen and bath)
- New cabinets
- Hardwood floors or NON-carpet flooring
- Revamp the furnace or replace (no filter on current furnace)
- Clean the heating ducts
- Clean furniture (will have to buy)
- Paint the whole house with Non-chemical / gloss / washable paint.
- New mattresses.
The house has to be very clean because Jessica's immune system will be very weak when she returns. This means that we will be replacing anything that might hold dust, germs, bacteria.
Here is an article written in their local paper -
Article -
http://www.etruth.com/news/story/334955/index.html
Do any of you guys know of an organization or contact
information that may be able to help with the supplies that we need?????
Jessica has a 95 percent chance the procedure will be successful, and 70 percent chance the disease will be completely gone in four to six weeks. With me being in Quality and this being my little buddy.......I see a 5% death rate and a 30% failure rate!!!! 
Thank you for taking the time to read this and keep my niece in your prayers....
You can -
* post it here
* e-mail me with any information zx12girl@yahoo.com
* or call me (269) 209-7373
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zx12girl
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Posts: 1740
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posted November 13, 2004 11:22 PM
Edited By: zx12girl on 13 Nov 2004 23:23
Any possible charity organizations that help with this kind of stuff??? I do not have a clue where to look.....
I contacted Manards (Will know in 2 weeks if they will help) and will be contacting Lowes this week.
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entropy
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Posts: 8671
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posted November 14, 2004 06:48 PM
Angi,
I am VERY sorry to hear about Jessica's situation.
I wish I knew anything to help; I know you didn't ask for contributions, but if i can help with one, just say so!!!!
I'll send $100 if you email yr address to me:
guntekd@chevrontexaco.com
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MadMike
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posted November 14, 2004 08:24 PM
Angie, both of my nieces are handicap and the Shriners have helped tons!!! the one has had over 1 Million dollers in surgery and they have covered alot of what the insurance will not. contact your local shriners and get the ball rolling for her!!
I am sure they can help they do so much for children!
Mad Mike
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ZX12Girl
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posted November 15, 2004 02:00 PM
Entropy........Your the best!!! Any one can donate if they have a Bank One or a Key Bank in their area, just put it in the "Jessica Hamilton Benefit Account".
Mad Mike......Thanks for the information. I did not think about them.
They contribute alot for children......I'll stop by and talk to someone.
This board has alot of great people.....Thanks a million!!!
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entropy
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posted November 17, 2004 01:35 AM
"the check is in the mail"
Its a pleasure to be able to help!!!
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